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  • Carol Link I have lived with lymphedema for the past 20 years.  I would like the community to be aware of the potential side effect of lymphedema which is cellulitis.  I contracted cellulitis about 15 years ago.  My Gyn oncologist called it the "flu which settled in my leg"!  I did have flu-like symptoms but my right leg was red and painful to the touch.  Finally I went to an emergency room where fortunately the correct dx was made.  My primary MD "aspirated" the infection which I later learned was probably the worst treatment he could do.  Please make sure MD and healthcare workers are thoroughly  educated in the treatment of lymphedema.   I was very close to losing my leg because of the infection.  I am very grateful to the professionals who are aware of the treatment of lymphedema.
    August 19, 2013

  • tina cotton I'm very grateful to find you here, yeah I'm a lymphie, love the name, it makes me giggle, I have lymphedema in the lower extremities, I had polio in left leg and foot at birt and this limb is the most effected, on top of that I have congestive heart failure....my thyroid hadn't worked in years, but a year ago I couldn't get it right, doctors gave up , I ended up on life support, and have spent this last year figuring it out for myself...I'm now on armour thyroid, and have been stable for 10months, and thought that my swelling was due to all tge other problems, but a month ago, my legs swelled huge, I now understand that lymphedema is separate, I have reaserched every angle, and at least understand, kjowledge is everything, and I will continue to learn and search for ways to improve .....thanks to all of you and this group...love tina
    July 17, 2013