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Ronald Bryant
Hi, i'm new here.. I've had lymph edema in both my legs since I had a blood clot in my right leg in 2001. It is a royal pain in the butt..This month coming up will be my 3rd time back to the lymph edema clinic as it runs in a cycle with me.
I would go to the clinic for 6 weeks to be massaged and wrapped in the elastic bandages and foam underneath, my legs would shrink back to normal size, and then I have to go to this place that makes orthotics to be measured for my custom made compression stockings..Now the problem starts when I'll be wearing them not even a month and they start digging into my skin, and the pain gets so bad, I pull the compression stockings off, and my legs are sensitive where I have sores and blisters and bleeding and pus, so I never put them back on which of course then the swelling comes back and i'm back at square 1.
at this point, my legs are so swollen up,they are like tree trunks and I cant wear regular clothes and avoid special occasions because I cant fit these legs through my pant legs, so I been wearing sweat pants and you can see the outline of my legs and people who dont understand lymph edema say I should be hospitalized and they will end up cutting those legs off and question how did they get that swollen?
Well thats my little introductory story. I'm just wondering if there is any alternative to the compression stockings that wont rip my skin apart..
June 16, 2016
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Robert Cohn
I have Lymphedema in my left leg as an aftermath of Non-Hodgkin Lymphoma in remission for 2 years with bi monthly chemo treatments. I am using a Lymphedema sleeve on the affect leg and question whether or not I should wear it on my unaffected leg as well. I have no pain in the leg(s) and the swelling makes the leg 50% larger but maintains the shape without looking swollen. Any suggestions would be appreciated.
June 12, 2016
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kim guesno
I HOPE EVERYONE IS HAVING A WONDERFUL DAY
June 3, 2016
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Collazo Diana
Somebody in this group from Tampa, Fl?
May 31, 2016
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Judy Tallant
I developed LE from the knee down, after each of my total knee replacement surgeries, 3-months apart, in 2013-2014. I live in Washington state - recently migrating to the southeastern part for a temporary project, after years of living a bit northeast of Seattle. I am looking forward to learning, and generally feeling less isolated and alone. I'm in a transitory position in my life and will be settling after this project ends, in a location yet unknown. My first criteria is great LE medical access.
Even in communities with good programs, there's no central place where they are all listed. If I'm looking for a new location to call home, anyone have knowledge of great services anywhere in the state? Or even outside of the state - I can really go anywhere I want. My 2nd criteria is lower cost of living so Seattle probably not my goal.
May 24, 2016
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BRYAN WAYNE
DOES ANYONE ON HERE KNOW OF ANY LYMPHEDEMA SPECIALIST IN THE VACAVILLE/SAC/DAVIS AREA OR LYMPTHATIC MASSAGE THERAPIST..,MY HEALTH PROVIDER DOSENT SEEM TO KNOW NOTHING WHICH IS KAISER...
June 2, 2016
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