Updates

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  katrina conrad Anyone here with arm lymphedema? I am so frustrated, I am ready to amputate my arm!
   

  • April 20, 2012

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    Staff Certified Lymphedema Therapist Hi Katrina! So sorry to hear how frustrated you are right now. Have you tried to seek out a therapist in your area that can treat your lymphedema? You can get a list of therapist from the Norton School web site that are in your area. Check it out! ...  moreHi Katrina! So sorry to hear how frustrated you are right now. Have you tried to seek out a therapist in your area that can treat your lymphedema? You can get a list of therapist from the Norton School web site that are in your area. Check it out! We are all here to help you!  

    • April 20, 2012
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    Lymphedema Community Staff You can request a list of certified lymhedema therapists in your area at:
    
    http://www.nortonschool.com/therapistreferrals.html

    • April 20, 2012
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    katrina conrad I have had many rounds with MLD. The problem is my insurance only covers 80% of 15 visits per year, so I can never get it totally under control. I just ordered a farrow wrap that I am hoping will help some.

    • April 20, 2012
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    Staff Certified Lymphedema Therapist Ever try a circAid Measure Up Arm sleeve? It is very easy to put on/take off and is highly adjustable and comfortable. May be easier to apply vs. the farrow wrap.

    • April 21, 2012
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    Lymphedema Community Staff http://www.lymphedemaproducts.com/products/circaid-measureup-2001.html

    • April 21, 2012
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    katrina conrad That is quite expensive and I just don't have that kind of money. I will see how the farrow wrap does since I already have it. Thanks.

    • April 21, 2012
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    Donna Jones I have stage II lymphadema in my right upper arm and hand that is hard to control. My insurance just approved the flexi-touch system and it arrived last week. It seems to work well so far. It is expensive. I had a 20% co-pay, but the company does work...  moreI have stage II lymphadema in my right upper arm and hand that is hard to control. My insurance just approved the flexi-touch system and it arrived last week. It seems to work well so far. It is expensive. I had a 20% co-pay, but the company does work with you on the co-pay. The company is Tactile Systems. It would be worth contactng them.  

    • April 23, 2012
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    julie martinez Katrina, me too. I've seriously thought of amputation. I watched Soul Surfer very closely! Sometimes I can't decide what is worse, battling cancer or lymphadema. ugh!

    • April 30, 2012
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