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  • Lympha Yogi
    Lympha Yogi is now friends with Doris Ortenberg.
    • September 5, 2013
  • Doris Ortenberg
    Doris Ortenberg is now friends with Allyson Hannah.
    • September 5, 2013
  • Lympha Yogi
    Lympha Yogi: Hi Doris! It's nice to meet you This website is great, it's so awesome to connect with other people with this condition, especially people close to my own age. So it sounds like we were about the same age when diagnosed, did your doctors know what it...  moreHi Doris! It's nice to meet you This website is great, it's so awesome to connect with other people with this condition, especially people close to my own age. So it sounds like we were about the same age when diagnosed, did your doctors know what it was right away? Have you had any treatment?  
    • March 24, 2013
  • Doris Ortenberg
    Doris Ortenberg Hello. My name is Doris, I am 20 years old, and live in Chicago. I have lymphedema in my left leg. I have been diagnosed for about ten years now and to this day, I am still having difficulty dealing with it and accepting it. I have never been able to...  moreHello. My name is Doris, I am 20 years old, and live in Chicago. I have lymphedema in my left leg. I have been diagnosed for about ten years now and to this day, I am still having difficulty dealing with it and accepting it. I have never been able to relate to anyone, let alone talk to anyone about this, so finding this community has become a blessing. Please feel free to message me, I would love to talk!  
    • March 18, 2013
  • Doris Ortenberg
    Doris Ortenberg has just joined the community. Say hello!
    • March 18, 2013
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Info

  • Classification Patient
  • Gender Female
  • Birthday November 4, 1992
  • Last Name Ortenberg
  • First Name Doris

Friends

  • Allyson Hannah
  • Lympha Yogi To My Lymphedema Community: Last week, I learned about a company that I feel has the potential to drastically change treatment and management outcomes for secondary lymphedema—and I wanted to share with you all! The company is called ImpediMed , and they sell the only FDA cleared device that can detect lymphedema unilaterally in arms (just for women) and unilaterally in legs (for both women and men).   In my opinion, the coolest part is that this device has the capacity to detect the accumulation of lymph fluid BEFORE clinical signs of lymphedema develop!  In other words, if a patient knows she is at risk to develop lymphedema due to a medical procedure, her doctor can order screenings using this device to monitor lymph fluid accumulation.  If results indicate that lymphatic flow is beginning to decrease, treatment can begin before swelling occurs.   I think we all know how critical early management of lymphedema is for efficacy, prognosis, and our bank accounts! I am sure you are wondering how this works, at least that was my first question!  The answer is:  bioimpedance spectroscopy technology.  I am not a scientist (just a fellow lymphie), but I will do my best to explain.  The device emits weak electrical currents at many different frequencies through the body.  By measuring the activity of the electrical currents in our extracellular spaces (where lymph fluid resides), the device can detect subtle changes in the amount of fluid long before visible swelling happens.  Amazing, right? As a person with idiopathic primary lymphedema, there was no way to know what was coming.  But, I am very hopeful that this device will help doctors and their future patients, who know they are at risk for lymphedema, have greater success managing swelling and pain.   Check out their websites at http://www.l-dex.com/ or http://www.impedimed.com/home.htm and keep spreading the word about lymphedema!   Happy Lymphedema Awareness Month!!
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