Updates

• 
  azurelle nolastname None of this is easy! It's going to be trial and error, obviously. And I think it's very person-specific, unlike say, a sprained ankle that has a standard of care. There is no standard for this because it's too hard to nail down. Interesting that you...  moreNone of this is easy! It's going to be trial and error, obviously. And I think it's very person-specific, unlike say, a sprained ankle that has a standard of care. There is no standard for this because it's too hard to nail down. Interesting that you were released for excerise -- was your swelling down and so on? Because my physical therapists (one for "reg" therapy after shoulder surgery and one for the edema) and I decided to STOP all excerise except mild stretching to keep my full exention after surgery and maybe some isometrics. In reality I've never felt "right" enough to do anything beyond limited daily tasks... and based on the last few days of me being back to square one anyway, whose to say what's right and what's wrong? I think this is going to be a matter of learning to listen to your body and what's going on with it now vs before. Of course, the signals are all scrambled, but that's just  learning curve --- much like everything else!  less

  • October 29, 2014

  • Staff Certified Lymphedema Therapist likes this.
• 
  Bonnie Taylor: I know what you are saying. I have CLL and enlarged nodes in the abdomen that have blocked the flow. Yesterday an oncology nutritionist told me that I would always have this condition and that I needed to find a certified therapist who would teach me...  moreI know what you are saying. I have CLL and enlarged nodes in the abdomen that have blocked the flow. Yesterday an oncology nutritionist told me that I would always have this condition and that I needed to find a certified therapist who would teach me self massage and it should be a daily regimen.  I wear compression hose and wrap my leg at night. Certified therapists appear to be few.   

  • October 26, 2014

  • 
    azurelle nolastname I've been told this is life-long damage as well. I've been advised it's going to be random --- some days will be worse than others, some days will be terrible, and there will be no way to tell what "set it off." And that seems to be true. Things were...  moreI've been told this is life-long damage as well. I've been advised it's going to be random --- some days will be worse than others, some days will be terrible, and there will be no way to tell what "set it off." And that seems to be true. Things were improving two weeks ago, the swelling was down enough I was finally able to wear an "off the rack" compression sleeve. This...    

    • October 27, 2014
    • -
    • 1 likes this
    • -
    • Report
  • 
    Bonnie Taylor The acceptance process is difficult for me at least. I believe the young woman who taught me to wrap my legs, while nice, was not very experienced, so wrapping at night may not be the best. It isn't comfortable certainly. I also thought I was doing well...  moreThe acceptance process is difficult for me at least. I believe the young woman who taught me to wrap my legs, while nice, was not very experienced, so wrapping at night may not be the best. It isn't comfortable certainly. I also thought I was doing well with the swelling and my dr. released me to exercise. I was very excited to get on the treadmill. One week later, my...    

    • October 27, 2014
    • -
    • Report
• 
  azurelle nolastname Thought I'd do a quick intro ... I have secondary non-cancerous lymph edema from shoulder reconstruction surgery this past May. Ugh. Is it just me or is it incredibly difficult to find really good care for this? Everything seems to be a by the seat of your pants.

  • October 16, 2014

  • 
    Staff Certified Lymphedema Therapist It sounds like you need to find a good therapist who has both lymphedema experience and shoulder rehab. experience. If you need to there is a therapist directory on the Norton School website so that you can find someone close to home.

    • October 21, 2014
    • -
    • Report
• 
  azurelle nolastname has just joined the community. Say hello!

  • October 4, 2014

  • 
    Lymphedema Community Staff Welcome!

    • October 4, 2014
    • -
    • Report