Updates

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  Peggy Warny → Steve Norton: Thanks for adding me... i am very new to this community, and have not really spent much time here...

  • April 24, 2009
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  Peggy Warny Hi everyone, my name is Peggy. I have secondary lymphedema in my left leg, I am also a self employed married mother of 3… I have had LE for about 10yrs, but was not diagnosed until the end of 2005. By the time I was diagnosed my toes and ankle...  moreHi everyone, my name is Peggy. I have secondary lymphedema in my left leg, I am also a self employed married mother of 3… I have had LE for about 10yrs, but was not diagnosed until the end of 2005. By the time I was diagnosed my toes and ankle were hard and fibrotic (rubbery) – my toes were square, my lower leg was at least double normal size and I was in so much pain I could hardly walk.
  After being diagnosed it took over 7months to get my insurance to approve therapy. Once I learned what to do, I spent hours massaging and working the fibrotic tissue out and the swelling down. Now, I wear a custom compression garment all day every day, and wrap (Multi Layer Compression Bandage) most every night. I still spend a lot of time caring for my leg, guess I hope that if I take good care of it now - I have a chance at getting old without too many complications. (Getting old with lymphedema is probably my “greatest fear”)
  I have a lot of pain and fatigue associated with the lymphedema. I guess I really don’t remember what it is to “not hurt”, however, it is mostly a low manageable pain, annoying more than anything. I try to stay as active as possible (I have 2 teenagers and a 4yr old… so keeping busy really isn’t the hard part). And yes, I am sure if I lost some weight I would feel better… (I know this, so please don’t tell me that! LOL)
  A little over a year ago, I made a video of me wrapping my leg, the main reason I made the video is because my family wanted to know what I did to care for my leg . Jenny ask me to post a link to it.. so here it is: http://www.youtube.com/watch?v=3NOflTkR268
  Well, I look forward to chatting with you all… be patient with me, I am a new-be here!
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  • April 16, 2009