I'm new to this website. I am a member of another LE website and find it very helpful. I am hoping to find that here. I am a bit taken back by everyone using real names and pictures. I prefer to remain as annoymous as possible for now anyway.
I have primary LE and lipedema. I spent 4 mos last year in MLD with wraps etc. then got a compression garment in July. I'm back to MLD since the new calandar yr with my health ins. ( they limit my visits per yr).
With all the MLD, lymphapress pump and compression, I still have yet to see a noticeable difference in fluid drainage. It seems all we do is move the fluid into my upper body. My LE therapist feels my pain and is trying her best. I'm just not responding like others. The lipedema does complicate things but still we should be seeing some results.
I now am experiencing shortness of breath, pressure in my chest and coughing. All tests so far show nothing so we believe it is from the fluid pushing on my insides. It has also made my acid reflux worse.
So I come here hoping for some new ideas and maybe find someone out there like me. I'm stage II LE and stage I lipedema. I want to make sure it doesn't get any worse!
I welcome your comments. Is there a live chat on this website also?