Blogs

  • Lymph Node Transplants

    Posted May 7 by Helen Bonynge

    http://lymphnodetransplant.wordpress.com/about-me/ Blog about the surgical interventions for Lymphedema... Patients stories

  • Lymphedema Treatment Act Update:

    Posted March 26 by Jenny Sterner

    Lymphedema Treatment Act Update:  March 26, 2013   We are still in the process of building our state teams to advocate for the Act. To date we have teams in 31 states - can you help us reach our goal of all 50? You can read more about the teams at http://lymphedemat...

  • Lymphedema Treatment Act Update:

    Posted February 10 by Jenny Sterner

    Lymphedema Treatment Act Update:   Our sponsor for the 113th Congress, Congressman Dave Reichert (R) of Washington State, who is a majority member of the powerful House Ways and Means Committee to which our bill has been referred, is working on preparations for reintroduction of the Lymp...

  • My lymphedema story

    Posted December 22, 2012 by Lympha Yogi

    HI Everyone!  I just wanted to say hello and share a little about my story.  I am a 24 year old female with primary lymphedema.  I was diagnosed when I was 11 after a battery of various tests.  My lymphedema is in my left lower extremity, starting in my toes and ending right belo...

  • Pumping on Flights

    Posted November 21, 2012 by AH Rock

    Has anyone experienced using a compression pump on an airlines? I have Lymphedema in my left leg, so of course it needs to be straight as I use my pump. How have you arranged this?

  • Lymphedema Treatment

    Posted October 4, 2012 by Rosa Covarrubia

    I just want to let the community out there know that I had a mastectomy on November 20, 2008, followed by chemo and radiation. Thirteen lymph nodes were removed including the axilla area. I have lymphedema. After little success from a lymphedema massage therapist the Flexitouch Lymphedema Syste...

  • Lymphedema Treatment Act Update--September 2012

    Posted August 31, 2012 by Jenny Sterner

    Lymphedema Treatment Act Update:   Going into the August recess our cosponsor count was 89. Although members of Congress and their staff still receive and review your letters, during recess new cosponsors cannot be officially added so I have no updated total for you.  Remember that persi...

  • night sleeve

    Posted August 17, 2012 by Mary Angel

    I didn't know I had so much to say. Does anyone know of a good night sleeve that is reasonable priced. The ones I have seen online are so high in price. It just might be the nature of the beast, but thought I would give a try here.  

  • ads for sleeves

    Posted August 17, 2012 by Mary Angel

    Just throwing out one of my observations.  I am looking online for a new sleeve. Don't you just love the models of the compression sleeves with their skinny little arms that look more like anorexia then someone with lymphedema?--just saying.

  • lymphedema a speed bump

    Posted August 16, 2012 by Mary Angel

      Just found this site. "Bar fight gone bad on a Saturday night" is my usual response when someone asks about my thickly wrapped arm. Easier then explaining breast cancer, the removal of lymph nodes, lymphphatic  fluid and such. Besides it gets a smile sideways and a guess if that is the ...