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  • Lymphedema Community Staff "Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow." ~ Mary Anne Radmacher
    November 9, 2012

  • Neojuna R Hello to all. I am a secondary from Cervical Cancer and am currently going through my 10 day therapy. I took a video today of my therapist wrapping me. If anyone would like to see it , let me know. My 1st attempt at wrapping this morning was awful. But I won't give up. Wrapping is like a puzzle. It was less than 7 minutes.
    May 19

  • Anne Rock Hi everyone. This is only my second post. I have been fairly successfully treating my left leg primary lymphedema for 3 years now. From what I have read here, I guess I have been lucky in that I don't have pain with it and have not lost much in range of motion.  Three years ago I began working with a therapist who was able to get some reduction, although of course my left leg is still larger than my right. At the same time I got a CircAid legging, which I later replaced with a JoviPak InnaBoot, which was much better for me.  Compression hose during the day and legging at night. I also use a Bio Compression pump for an hour 3 times a day. I hope to replace that pump soon with a Lympha-Press Optimal, so it can drain my torso before bringing it up from my leg. I look forward to learning more from the rest of you. Although my doctors have been wonderful and very encouraging, we seem to lack enough specialists for Lymphedema treatment, so it helps to learn all we can by ourselves.
    January 6, 2014

  • Danny Dorroh My 61-year-old brother has had lymphedema in his left leg ever since he had radiation therapy for cancer 19 years ago. His leg is extremely large, and he has a badly damaged knee. The leg has been a physical burden for him for a long time, and it has deteriorated to the point that he can no longer walk. The strain of having to carry the leg has left him with an injured back and shoulder. He made an appointment with an orthopedic surgeon last week, and is now scheduled to have the leg amputated this coming Tuesday. I can understand my brother wanting to be free of the burden of the leg, but I don't think he has considered all the ramifications. I only have anecdotal evidence at this point, but it is my understanding that after the leg is removed the lymphedema will simply migrate to other parts of his body. Is that always true, or is there a chance it won't? I read a blog from a man who had had his leg removed due to lymphedema, and he said the swelling had moved to his scrotum and his other leg. Is that necessarily going to happen to my brother?
    May 10

  • Kim Dorz Hi, wondering if anyone can provide some help and/or insight.  I work in an acute care hospital.  Some of out PTs want to know about using tubigrip on persons having just undergone total knee replacement.  The goal would be to reduce post surgery edema.  Any thoughts, info, or research you can share?  Thank you, in advance. 
    Apr 30