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  Harriett Richard Got a spider or misquisto bite this past weekend. No fever but 3 bites on lymphedema arm and one on other arm. Fortunately-swollen lymph node, unfortunately-left arm is swollen. Using Benadryl & cortisone cream. The bite area circles are beginning to...  moreGot a spider or misquisto bite this past weekend. No fever but 3 bites on lymphedema arm and one on other arm. Fortunately-swollen lymph node, unfortunately-left arm is swollen. Using Benadryl & cortisone cream. The bite area circles are beginning to harden. I plan on calling my regular dr today. Sometime soon because they really itch!!!! Any suggestions?????#itreallyitches #ihopetofeelbettertomorrow #lymphedema #hardening  less

  • October 8, 2018
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    margaret webb I hope you feel better very soon

    • October 8, 2018
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    margaret webb Any update on the bites? I am hoping you feel better.

    • October 9, 2018
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    Harriett Richard Thanks for the concern, Margaret. The dr gave me two prescriptions one antibiotic the other is a cream to rub into the bites. He said to call tomorrow if no progress. But the area is no longer warm or so itchy. The lymph node under my arm appears to be...  moreThanks for the concern, Margaret. The dr gave me two prescriptions one antibiotic the other is a cream to rub into the bites. He said to call tomorrow if no progress. But the area is no longer warm or so itchy. The lymph node under my arm appears to be shrinking also. Unfortunately, he didn’t think the swelling in my arm with lymphedema would go down.  

    • October 10, 2018
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  Brenna M. wrote a new blog entry:

  Lymphedema Treatment Options That WORK

  It’s been three years since I underwent LVA and I have a promising update to share with those interested in the procedure: it works and three years later, I’m still experiencing benefits.
  What’s LVA?
  LVA is a super micro-surgery where ...

  • #lymphedema
  • #surgery for Lymphedema
  • #LVA
  • #VLVT
  • #lipo for lymphedema
  • #LE
  • #Vascularized Lymphatic Vessel Transfer
  • #treatment options for lymphedema

  • August 14, 2018

  • Denise McDaniel likes this.
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    Harry Chait How old were you when the surgery was performed? was it covered by insurance or Medicare? Dr. Chen is in the Chicago. Do you live in Chicago?

    • May 4, 2019
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    Brenna M. Hi Harry, I was 31 when I had the first surgery. It was covered by insurance - although it was a process, which Dr. Chen's team was VERY helpful in navigating. Dr Chen is in Iowa, not Chicago. I don't live in Iowa or Chicago. I travelled for the surgery.

    • May 7, 2019
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    Julie Maulsby Hi Brenna! I wondered how you were doing now and whether you decided to go ahead with the transfer? I’m also trying to get surgery with Dr Chen but my insurance isn’t cooperating!

    • August 2, 2019
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    Amy Tramm Hi Brenna! Thank you for the encouraging post. I have gone from stage 1 to stage 2 and my oncologist has steered me away from surgical intervention for 10 years. I would love to hear an update! Did you decide to do the VLVT?

    • December 6, 2019
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    Brenna M. Hi Amy - happy to chat about if you want to shoot me an email. Bmello924@gmail.com
    
    Im so glad I did the surgery. It stopped my leg from getting worse, but also decreased significantly in size. For many people with stage 1 or 2 it reverses the condition...  moreHi Amy - happy to chat about if you want to shoot me an email. Bmello924@gmail.com
    
    Im so glad I did the surgery. It stopped my leg from getting worse, but also decreased significantly in size. For many people with stage 1 or 2 it reverses the condition completely and eliminates the need to wear a stocking. That wasn’t the case for me bc I was too advanced already but still made it much more manageable. But email me if you want to learn more I’m happy to share my experience with you and answer any questions  less

    • December 6, 2019
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  Cade Flin.. wrote a new blog entry:

  

  Sharing 25 Years of Experience as a Lymphedema Patient

  I have had lymphedema for all 25 years(so far) that I have been on this earth. There is an astonishing amount of misinformation and lack of information available for patients and professionals, so I thought I would share my experience. If you can add to t...

  • #lymphedema
  • #treating lymphedema
  • #lymphedema management
  • #new swelling
  • #treatment
  • #lymphedema care
  • #lymphedema truth
  • #lymphoedema

  • January 25, 2017

  • Sharon Vogel, CLT likes this.
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  Tony M wrote a new blog entry:

  

  Lymphedema and Dating

  Well I hear a lot talk about self esteem when it comes to women with lymphedema dating. I find it difficult to find a date with someone who has it though. There are guys like me that understand the disease and unlike most men admire a woman with extremely...

  • #lymphedema
  • #dating
  • #legs
  • #big
  • #date

  • November 2, 2016
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  Jim Miller wrote a new blog entry:

  

  Kidney functions and lymphedema?

  Has anyone found a relationship between primary lymphedema and kidney functions? Or dysfunctions, I should say? I've had primary lymphedema since 1967, it's well managed since 2009 with CDT, MLD, nightime compression, daily Class IV garment wear, and good...

  • #lymphedema
  • #kidney
  • #primary
  • #creatinine

  • July 28, 2014

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    Sharon Vogel, CLT Hello, Mr. Miller, I came across your blog question which correlates to another blogger's similar question posed to Dr. Stanley Rockson of LE&RN: https://lymphaticnetwork.org/ask-experts/e/stanley-rockson#496

    • December 2, 2017
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  Constance Miller wrote a new blog entry:

  lymphedema and cold laser

  Looking for research articles on treatment of lymphedema, post breast surgery, with cold laser.  Anyone have any good articles to share?

  • #lymphedema
  • #cold laser

  • December 4, 2013
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  Lympha Yogi shared Rosa Covarrubia's blog. Rosa, I am so glad that you found a treatment that has been working for you I just wanted to share that I also use a Flexitouch (wraps around my torso and then my entire left leg) and have had great results. They can be kinda expensive, but the...  moreRosa, I am so glad that you found a treatment that has been working for you I just wanted to share that I also use a Flexitouch (wraps around my torso and then my entire left leg) and have had great results. They can be kinda expensive, but the company offers a variety of affordable options. I purchased a refurbished, used machine with new garments for a fraction of the price of the newest model. The therapists are really nice too!  less

  

  Lymphedema Treatment

  I just want to let the community out there know that I had a mastectomy on November 20, 2008, followed by chemo and radiation. Thirteen lymph nodes were removed including the axilla area. I have lymphedema. After little success from a lymphedema mass...

  • January 2, 2013

  • Lymphedema Community Staff, Janette Cromell, and Michelle Howard like this.
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  Rosa Covarrubia wrote a new blog entry:

  

  Lymphedema Treatment

  I just want to let the community out there know that I had a mastectomy on November 20, 2008, followed by chemo and radiation. Thirteen lymph nodes were removed including the axilla area. I have lymphedema. After little success from a lymphedema mass...

  • #lymphedema

  • October 4, 2012
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  Mary Angel wrote a new blog entry:

  lymphedema a speed bump

   
  Just found this site. "Bar fight gone bad on a Saturday night" is my usual response when someone asks about my thickly wrapped arm. Easier then explaining breast cancer, the removal of lymph nodes, lymphphatic  fluid and such. Besides it gets...

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  • #lymphedema

  • August 16, 2012

  • Staff Certified Lymphedema Therapist and Jenny Sterner like this.