Kathryn Krastin → Jenny Sterner: TY for being the first one to join my event on March 6th, albeit rightly so. ;) I do hope that we can continue to spread the word and generate a buzz before the show, generating more and more listeners to hear this unique show honoring all Lymphedema pat... moreTY for being the first one to join my event on March 6th, albeit rightly so. ;) I do hope that we can continue to spread the word and generate a buzz before the show, generating more and more listeners to hear this unique show honoring all Lymphedema patients' struggles and the hope for more awareness to create a cure. :)
Let me know what other ideas you might have to generate PR buzz for this show, Jenny.
Thanks for your support!!
Kathryn Krastin → Brenda Pittman: I have had quite a bit of therapy done on my calves, but my thighs need it to. Taking one step at a time. My right side is much worse than my left, but is steadily improving. Hoping that yours is also continuing to improve.
Kathryn Krastin → George Davis: Hey, babe! Glad you decided to join this interesting community focused on the condition that I have. Maybe we'll learn something new to try along this journey. :D
To answer your question, I am trying to see what is new in the Lymphedema world, trying to stay on top of what is happening to see if there is any new treatment, ... moreHey, I guess I need to be online for you to chat with me. I haven't been on in a few days.
To answer your question, I am trying to see what is new in the Lymphedema world, trying to stay on top of what is happening to see if there is any new treatment, garment, tool, etc that can help get my legs more normalized.
Plus I get frustrated at times with the hurdles that are placed in front of us -- even by the very doctors that are supposed to be advocating for us. (Lately, I needed to replace the Juxtafit garments that are over a year old and splitting from the bottom, but she refused because she doesn't like the provider I was getting mine through. I should have the option of getting my garment from whatever provider I feel best advocates for me -- especially advocating with the insurance company, etc.)
Hope you are having a good journey with this condition overall. Thanks for stopping by my profile. :) less
Catherine Schneider: Hi Kathryn, I am trying to see how to chat with you while you are online, but not sure. So what are you checking out about lymphedema? Cathy Schneider
Fantastic. Welcome to the profession. I wish you the best in this important field and patient population.
Today, we lost someone from our community who meant so much to so many of us, including myself. I will miss Pat terribly, although we never met in person. The below is reposted from the Advocates for Lymphedema Yahoo group; it is truly a very sad day. :(
It is with great sadness that I must send this message.
Pat O'Connor, Founder of Lymphedema People, Huge Advocate for those who have Lymphedema, etc., passed away this morning in his sleep,per a message that I received via the Lymphedema People Facebook Group page per his son.
He leaves behind a huge group of friends and family including daughter - Emily and family, son - Patrick Jr and family as well as several sisters and other family members.
Once I have more information in regards to funeral/memorial I will pass on all
If you have been following me on my BEYOND WORDS LIVE radio show on BlogTalkRadio you will have heard several advocates speak out about the bill, what they have been doing in Washington, DC, and what still needs to be done.
At this moment, we have 33 co-sponsors for the bill.... and still growing i...
Hey, just wanted to share with you all a book that I discovered through a place called LYMPHEDEMA PRODUCTS, LLC. (http://www.lymphedemaproducts.com) that focuses upon the emotional well-being of a lymphedema patient, as well as family/friends/caregivers of the lymphedema patient. I ...
I hate change when one has been having a great response to Blue Cross Blue Shield in the past with the paying for lymphedema treatment costs and garments, pump, etc. Now, my employer (due to cost factors) are considering changing to Aetna Insurance.
Anyone with any pros/cons about Aetna...
In case you missed the show, you can still hear the show at http://www.blogtalkradio.com/rlrn/2010/03/06/beyond-words-live-an-oral-history-project.
Please pass this link to others to bring about a greater awareness of lymphedema to others, as well as discussion about the HR ...
So if I get another prescription from my doctor here in Austin, TX, vowing to not to go to the vendor that I am used to going to for over a year (because my doctor doesn't like the vendor), where else can I get a custom JUXTAFIT ordered under my insurance plan??
There is a group of advocates that are heading to Washington DC during the last week of May. They are walking the Capitol Hill to reach legislators in hopes to get the HR 4662 Bill passed.<br /><br />On June 5, 2010, I will have members of th...
We aired one show on March 6th this year discussing the new bill involving improvement for healthcare costs for LE patients - HR 4662. On May 2nd, we are going to follow up on that show with an update from Jenny, Jennifer and myself -- and perhaps anothe...
This is a show that is being aired by myself on REAL LIFE RADIO NETWORK (which is actually launching on February 15th) to honor National Lymphedema Day, which was announced by the latest National Lymphedema Network (NLN) newsletter. Guest speaking will b...