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  Harriett Richard → Helen Akin: Here’s an update sort of http://hwrichard.info/wp/genuine-care-giver/. #lymphadema #feelingbetternow

  • November 3, 2018
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  Harriett Richard Got a spider or misquisto bite this past weekend. No fever but 3 bites on lymphedema arm and one on other arm. Fortunately-swollen lymph node, unfortunately-left arm is swollen. Using Benadryl & cortisone cream. The bite area circles are beginning to...  moreGot a spider or misquisto bite this past weekend. No fever but 3 bites on lymphedema arm and one on other arm. Fortunately-swollen lymph node, unfortunately-left arm is swollen. Using Benadryl & cortisone cream. The bite area circles are beginning to harden. I plan on calling my regular dr today. Sometime soon because they really itch!!!! Any suggestions?????#itreallyitches #ihopetofeelbettertomorrow #lymphedema #hardening  less

  • October 8, 2018
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    margaret webb I hope you feel better very soon

    • October 8, 2018
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  • 
    margaret webb Any update on the bites? I am hoping you feel better.

    • October 9, 2018
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  • 
    Harriett Richard Thanks for the concern, Margaret. The dr gave me two prescriptions one antibiotic the other is a cream to rub into the bites. He said to call tomorrow if no progress. But the area is no longer warm or so itchy. The lymph node under my arm appears to be...  moreThanks for the concern, Margaret. The dr gave me two prescriptions one antibiotic the other is a cream to rub into the bites. He said to call tomorrow if no progress. But the area is no longer warm or so itchy. The lymph node under my arm appears to be shrinking also. Unfortunately, he didn’t think the swelling in my arm with lymphedema would go down.  

    • October 10, 2018
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  Allie C New Blog Post: #OOTD September. Pictures and links to my favorite outfits from September. xoxo-Allie

  

  #OOTD September

  Finding stylish and comfortable pants & shoes with lower extremity lymphedema. Always learning to love life, even when times are tough.

  • October 4, 2018
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  margaret webb wrote a new blog entry:

  Angela Gamble

  Happy birthday to Angela Gamble

  • #Birthday

  • September 21, 2018
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  Brenna M. wrote a new blog entry:

  Lymphedema Treatment Options That WORK

  It’s been three years since I underwent LVA and I have a promising update to share with those interested in the procedure: it works and three years later, I’m still experiencing benefits.
  What’s LVA?
  LVA is a super micro-surgery where ...

  • #lymphedema
  • #surgery for Lymphedema
  • #LVA
  • #VLVT
  • #lipo for lymphedema
  • #LE
  • #Vascularized Lymphatic Vessel Transfer
  • #treatment options for lymphedema

  • August 14, 2018

  • Denise McDaniel likes this.
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  • 
    Brenna M. Definitely try Dr. Chen - he's done more of the surgeries in the U.S. than any other doctor - https://uihc.org/wei-f-chen

    • August 28, 2018
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    Harry Chait How old were you when the surgery was performed? was it covered by insurance or Medicare? Dr. Chen is in the Chicago. Do you live in Chicago?

    • May 4, 2019
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    Brenna M. Hi Harry, I was 31 when I had the first surgery. It was covered by insurance - although it was a process, which Dr. Chen's team was VERY helpful in navigating. Dr Chen is in Iowa, not Chicago. I don't live in Iowa or Chicago. I travelled for the surgery.

    • May 7, 2019
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    Amy Tramm Hi Brenna! Thank you for the encouraging post. I have gone from stage 1 to stage 2 and my oncologist has steered me away from surgical intervention for 10 years. I would love to hear an update! Did you decide to do the VLVT?

    • December 6, 2019
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  • 
    Brenna M. Hi Amy - happy to chat about if you want to shoot me an email. Bmello924@gmail.com
    
    Im so glad I did the surgery. It stopped my leg from getting worse, but also decreased significantly in size. For many people with stage 1 or 2 it reverses the condition...  moreHi Amy - happy to chat about if you want to shoot me an email. Bmello924@gmail.com
    
    Im so glad I did the surgery. It stopped my leg from getting worse, but also decreased significantly in size. For many people with stage 1 or 2 it reverses the condition completely and eliminates the need to wear a stocking. That wasn’t the case for me bc I was too advanced already but still made it much more manageable. But email me if you want to learn more I’m happy to share my experience with you and answer any questions  less

    • December 6, 2019
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  Harriett Richard wrote a new blog entry:

  Harriette’s blog

  This is a recent blog posting of mine. It contains 2 others on lymphedema. Hopefully, it will serve as my introduction. I’m happy to find this community.
  
  http://hwrichard.info/wp/live-your-best-lymph-life/

  • ##lymphedema

  • May 26, 2018
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  Cathy Stelzleni shared Galasso Carol's blog. Hi, I posted today about the question you are asking about. I purchased a compression machine from Amazon recently. It works as good as the one i had at PT. It paid for itself after a couple of weeks of use. It is approximately $485. Good luck.

  My wife's Lymphedema

  Hello Everyone,
  I am writing this for my wife Carol who has recently been diagnosed with Lymphedema. The condition is in her right leg from the knee down to and including the foot. The treatment that has been recommended for her is massage physical thera...

  • May 18, 2018
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  Galasso Carol wrote a new blog entry:

  My wife's Lymphedema

  Hello Everyone,
  I am writing this for my wife Carol who has recently been diagnosed with Lymphedema. The condition is in her right leg from the knee down to and including the foot. The treatment that has been recommended for her is massage physical thera...

  • #Treatment Options

  • December 5, 2017
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  Cade Flin.. wrote a new blog entry:

  

  Sharing 25 Years of Experience as a Lymphedema Patient

  I have had lymphedema for all 25 years(so far) that I have been on this earth. There is an astonishing amount of misinformation and lack of information available for patients and professionals, so I thought I would share my experience. If you can add to t...

  • #lymphedema
  • #treating lymphedema
  • #lymphedema management
  • #new swelling
  • #treatment
  • #lymphedema care
  • #lymphedema truth
  • #lymphoedema

  • January 25, 2017

  • Sharon Vogel, CLT likes this.
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  Tony M wrote a new blog entry:

  

  Lymphedema and Dating

  Well I hear a lot talk about self esteem when it comes to women with lymphedema dating. I find it difficult to find a date with someone who has it though. There are guys like me that understand the disease and unlike most men admire a woman with extremely...

  • #lymphedema
  • #dating
  • #legs
  • #big
  • #date

  • November 2, 2016
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  Donna Payne wrote a new blog entry:

  Lymphedema after knee surgery

  I had total knee replacement in May, and developed Lymphedema approx 2 months later. Is there any advice as to how to deal with this, diet, excercise, etc.? I am wearing custom compression thigh high for the affected leg.

  • #Knee surgery

  • October 5, 2016
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  Laura Kort shared Kathy Warwick's blog. I use Jobst Bella Light with the band at the top to keep t up. Working so far but it's only been 6-7mths.since diagnosis of lymphedema in left arm.

  Armsleeves

  I have Lymphedema in one arm brought on recently by a mastectomy 15 years ago.  I am struggling to find the most effective armsleeve and am currently looking at the Jobst Bella Strong and Jobst Bella Lite. Does anyone have any experiences with one or...

  • June 16, 2016
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  Lori Fuller wrote a new blog entry:

  Declined by Insurance for LVA

  My sister and I both are candidates for LVA surgery with Dr. Chen in IowaCity, IA. My sister Wendy Boylan is at stage 4 and stage 5 in her legsaccording to the lymphograph. (sp) The insurance company has just deniedher stating it is not medically necessar...

  • #Insurance
  • #LVA
  • #Denied

  • July 7, 2015
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  sandra renaud wrote a new blog entry:

  truncle le

  Hi I have had truncle le for 8 year The only treatment I have done was compresson and it gave me  more pain after I removed the vest. I am on 30 mgs of slow release morphine and am not getting the same pain managment as when I started My docter will ...

  • #pain

  • June 11, 2015
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  Brenna M. wrote a new blog entry:

  LVA is Effective Treatment for Lymphedema

  I recently underwent surgical treatment for primary lymphedema in my right leg. The procedure, called LVA (Lymphaticovenous anastomosis) was performed on April 21, 2015 and I’m already seeing a significant improvement in my swelling!
   
  Some B...

  • #lymphedema treatment
  • #surgery for Lymphedema
  • #LVA
  • #Lymphaticovenous anastomosis

  • May 1, 2015

  • Anna Ensley likes this.
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    Anna Ensley Hi Brenna, my son just had the surgery in a children’s hospital and we are told no bed rest and bandaging. I’m curious how bad your lymphedema was. My son is stage 2 I think. His feet are the worst. How long did it take for you to see results? How...  moreHi Brenna, my son just had the surgery in a children’s hospital and we are told no bed rest and bandaging. I’m curious how bad your lymphedema was. My son is stage 2 I think. His feet are the worst. How long did it take for you to see results? How many connections did he make?  

    • July 30, 2019
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    Brenna M. Hi Anna, I'm really glad to hear you son had the surgery. It's most effective the younger the person and the less advanced the stage. I was at stage 4. I think my doctor attempted 6 connections and was able to make 4. I saw results right away, and my leg...  moreHi Anna, I'm really glad to hear you son had the surgery. It's most effective the younger the person and the less advanced the stage. I was at stage 4. I think my doctor attempted 6 connections and was able to make 4. I saw results right away, and my leg continued to go down and heal more over the years. I wrote a more recent blog for an update: https://bit.ly/2Ys4yFN
    
    I'm actually going back for my annual check up in a few weeks to discuss any future options to further my healing.  

    • July 31, 2019
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• 
  Nathalie B wrote a new blog entry:

  

  Alternative to bandages

  Hello!
  I have not posted in a long time, but I think is time I share that kinesio taping has been working very well for me, I was able to learn how to do it by a therapist and now I do it myself. I have not used compression in more than a year now and my...

  • #Kinesio
  • #taping

  • August 5, 2014
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  Jim Miller wrote a new blog entry:

  

  Kidney functions and lymphedema?

  Has anyone found a relationship between primary lymphedema and kidney functions? Or dysfunctions, I should say? I've had primary lymphedema since 1967, it's well managed since 2009 with CDT, MLD, nightime compression, daily Class IV garment wear, and good...

  • #lymphedema
  • #kidney
  • #primary
  • #creatinine

  • July 28, 2014

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    Sharon Vogel, CLT Hello, Mr. Miller, I came across your blog question which correlates to another blogger's similar question posed to Dr. Stanley Rockson of LE&RN: https://lymphaticnetwork.org/ask-experts/e/stanley-rockson#496

    • December 2, 2017
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• 
  Anne Rock wrote a new blog entry:

  

  A HINT to avoid one cold leg at night.

  I have a solution tor those who have one-leg Lymphedema to keep the normal leg at about the same temperature at night as the one that is wrapped.
  I insert the Lymphedema-side leg of a pair of pajamas (or sweats, Pilates pant...

  • #warm
  • #temperature
  • #one leg
  • #hint
  • #night

  • June 13, 2014

  • Lymphedema Community Staff likes this.
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  Julie Deane wrote a new blog entry:

  Bandaging question

  I'm a new therapist. When I unwrap my patients bandages there are areas of raised fluid filled skin at the tibia and on the sides where there is space between the foam pieces...is this normal? Can this be avoided?

  • #Bandaging
  • #foam

  • April 28, 2014

  • 
    Staff Certified Lymphedema Therapist Hi Julie, I have experienced this before with some of my patients with fragile skin. Really, you just need to protect the blisters under your next bandage and make sure that your bandage isn't too loose. Cellona over these sensitive areas is...  moreHi Julie, I have experienced this before with some of my patients with fragile skin. Really, you just need to protect the blisters under your next bandage and make sure that your bandage isn't too loose. Cellona over these sensitive areas is recommended also. Good luck!  

    • April 30, 2014
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• 
  Kathy Warwick wrote a new blog entry:

  Armsleeves

  I have Lymphedema in one arm brought on recently by a mastectomy 15 years ago.  I am struggling to find the most effective armsleeve and am currently looking at the Jobst Bella Strong and Jobst Bella Lite. Does anyone have any experiences with one or...

  • #compression
  • #Jobst
  • #Bells Strong
  • #Bella Lite

  • April 4, 2014