Blogs

  • HR 4662 - Lymphedema Cost Relief Bill on Capitol Hill

    Posted July 2, 2010 by Kathryn Krastin

    If you have been following me on my BEYOND WORDS LIVE radio show on BlogTalkRadio you will have heard several advocates speak out about the bill, what they have been doing in Washington, DC, and what still needs to be done. At this moment, we have 33 co-sponsors for the bill.... and still growing i...

  • new to this site

    Posted April 26, 2010 by Kathy B

    Hello all, I'm new to this website.  I am a member of another LE website and find it very helpful.  I am hoping to find that here.  I am a bit taken back by everyone using real names and pictures.  I prefer to remain as annoymous as possible for now anyway. I have primary ...

  • Emotional Well-being

    Posted April 23, 2010 by Kathryn Krastin

    Hey, just wanted to share with you all a book that I discovered through a place called LYMPHEDEMA PRODUCTS, LLC.  (http://www.lymphedemaproducts.com) that focuses upon the emotional well-being of a lymphedema patient, as well as family/friends/caregivers of the lymphedema patient.  I ...

  • Employer is Changing Insurance Companies...

    Posted April 15, 2010 by Kathryn Krastin

     I hate change when one has been having a great response to Blue Cross Blue Shield in the past with the paying for lymphedema treatment costs and garments, pump, etc.  Now, my employer (due to cost factors) are considering changing to Aetna Insurance. Anyone with any pros/cons about Aetna...

  • National Lymphedema Awareness Day - Radio Show

    Posted March 6, 2010 by Kathryn Krastin

     In case you missed the show, you can still hear the show at http://www.blogtalkradio.com/rlrn/2010/03/06/beyond-words-live-an-oral-history-project.   Please pass this  link to others to bring about a greater awareness of lymphedema to others, as well as discussion about the HR ...

  • How can this site serve you better?

    Posted February 11, 2010 by Steve Norton

     Hello Lymphedema Community members!   As you can see we are nearing the 500 member mark which is wonderful. There's been much blogging taking place and many friendships forming. With this short note I wanted to ask if you would value us  adding or subtracting anything from Lymp...

  • JUXTAFIT VENDORS

    Posted February 6, 2010 by Kathryn Krastin

     Okay...  So if I get another prescription from my doctor here in Austin, TX, vowing to not to go to the vendor that I am used to going to for over a year (because my doctor doesn't like the vendor), where else can I get a custom JUXTAFIT ordered under my insurance plan?? What vendo...

  • Okay, so this isn't a story about LE...

    Posted January 30, 2010 by Kathryn Krastin

     ... but this is certainly a story of someone taking a different perspective of her ordeal with MS and taking it to a new height.     Please go to her page and read her phenomenal story for added inspiration....   http://fabulously40.com/blog/id/spoons-how-many-do-you-have-90...

  • Surgeries?

    Posted January 26, 2010 by Kathryn Krastin

    What do we know about surgery as a possible treatment for lymphedema? My boyfriend mentioned that his nephew had an enlarged scrotum from his sister kicking him, which surgery was performed.  Tonight, a friend mentioned that she has had several surgeries to combat the problem. Just curious......

  • YOU TUBE - SO WE CAN DANCE!!

    Posted January 22, 2010 by Kathryn Krastin

    What do y'all think about creating a You Tube video where we have folks taking a cam picture of each of us dancing in our surroundings--and, then someone editing these together to form one You Tube video to the tune of something about "can dance" and/or "can live" and posting it as an awareness...